Huggies Forum

Aniridia Rss

Hi, My 9 month old boy has just been diagnosed with the rare condition, Aniridia, meaning he has no irises. I am wondering if anyone knows someone who has this condition or has a child with this condition that I could email to share experiences/learnings. Thanks,
Julie.
Hi Julie,

my name is arlene i have 2 children with aniridia if you ever need to talk email me at haleys@clear.net.nz

from,
arlene
Hi there

I know its a few years late but this just came up in a Google Search. I am 28 and was born with bilateral congenital aniridia so if you ever have any questions, please feel free to get in contact smile

Elodie
Hello,

My 5 month old son has Aniridia. I have connected with many families on Facebook through the group United Families of Aniridia. Definitely worth checking out.

Erica
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