Just wondering if there are any mums out there with advice on kids with Goldenhar syndrome, microcia, cleft palate & tracheostomys. My beautiful 2month old baby girl has been diagnosed with probable Goldenhar syndrome and we have mfinally come home from the hospital. Because of her cleft palate and undeveloped chin shes also a tracky baby. Would love to hear from any mums out there with kids with similar things. Thanks x

my brother in law has goldenhar so although im not a parent of someone with it i do have some insight.

he is 23 now and leads a fairly normal life.... he has had to endure multiple surgeries and his last one was about a year ago so its been hard from that aspect.
he has had to have a speech therapist to help as he sounds similar to a deaf person and can be very hard to understand but as iv known him for years i can understand him quite well.
i know that he had many complications as a baby with his heart aswell but most of his issues revovled around his facial bones.
he has prosthetic ears aswell. above all though my BIL mentally does great, he has dealt with the stares and teasing (he attended regular school) and hes now running a successful computer business.