I am after some opinions from parents of kids on the spectrum. This will be long as i try to explain so please bare with me...
We have recently finally seen a peadiatrician and were given a 'diagnosis' of OCD with Speech Delay. Not to bother with any form of treatment...just to ignore it basically. This came after an absolutely shocking appt where he did not interact with our DS at all aside from saying hello and then glancing at him a few times (where DS did not respond and promptly covered his face) The whole appt this Dr did not listen to what we had to say, ignored what we felt were key points, wrote things down wrong and was more interested in telling us about his 80 year old uncle with Aspergers and comparing our son to his Autistic son who by the sounds of it has very severe classic autism.
For example..we told him about our DS having good language development then from the age of around 20 months lost it all (as well as knowledge) to the point where he did not even say mum anymore...he did not speak many words at all until over the age of 3 and now is improving but is still delayed. Once we spoke of this the Dr proceeded to tell us his son didn't speak till 6 so why worry. We had a speech assessment done 6 months ago and it showed on the line he was almost in the most severe catagory..of course that has changed now he is talking more. I asked for a referral to Speech the Dr however told us not to bother with Speech Therapy because his son only learnt 1 word in 3 years...it's a waste of time and i was not given one. As with OT...DS has many delays in both fine and gross motor skills but once again a referral was ignored but was written down.
He was also wrong about certain things in his explanations. He told us that children with Aspergers cannot talk properly and will not look at you. That's not true! When we asked about DS bowel issues he told us it was just toddler diarreah and will develop into IBS which he then explained wrong also. A director of peadiatrics should know his stuff.
Now, i know DS may not have ASD at all or may not even be on the spectrum but i felt like we were not even given a proper assessment. From the moment he read our referal he was very unprofessional. He read it in 'voices' he put on...made fun of our GP etc. Told us all Dr's have obsessions like lining up sugar packets and it means our son will become a Dr too. The main points this Dr said for reasons our son absolutely cannot be on the spectrum were that he shows some eye contact, he smiles, he is affectionate and he likes animals and shows empathy. A child on the spectrum will NEVER do those things. I don't believe that. He did not listen that the eye contact is limited, the affection is mostly on his terms and the empathy is only in certain instances..if you are crying he can see you are upset but he does not really recognise any other form of sadness, pain etc and just laughs most times when someone is hurt. This may not mean anything but it was ignored because his son does not show any of those.
To me, OCD cannot explain all my sons behaviours and delays. He is not bothered by these rituals and obssessions etc like someone suffering OCD would be. We have since gone back to our GP and gotten another referral for a different Pead aswell as Speech and OT. I am just so frustrated we have to wait again...it took over a year to get that appt! Our new appt is in Nov so nowhere near as long thankfully but it is still time wasted that we could be accessing assistance for our son. He will be 4 in Nov and i was really hoping to have this sorted before he started school.
I'll list a few main things off the top of my head and then my questions
*Severe Speech Delay with improvement now.
*Loss of language skills and knowledge (shapes, colours etc) that is now being regained
*Licks everything..people, the ground, the walls, his toys etc.
*Head bangs (not as regularly as the other things) and picks his skin
*Wipes his hands through his hair as soon as he touchs something
*Has had genital injuries from an obssessive 'rolling' behaviour
*Lashes out for no reason
*Violent tantrums over the tiniest things that last longer than normal and he cannot be consoled
*Does not handle day to day change but handled new sister, new house etc
*Things have to be a certain way
*Very sensitive to slight injuries and carries on about them long after the bruise/scrape is gone
*Very limited interests in many things and they are all he likes (toys, shows etc)
*Incredible memory..almost unbelievable
*Sloppy peanut butter consistency of BM...very acidic that eats his skin till he bleeds. Dr said take him off dairy...made no improvement whatsoever.
*Only has just become TT for number 1's but was a struggle...and he is completely dry every night also from the get go. Still will not go for #2 unless in a nappy...complete meltdown.
*Fine and Gross motor skill delays..just a few-
-Can't pedal a bike
-Can't climb a climbing frame etc
-Can't use scissors
-Can't draw a line, circle or hold a pencil properly
15 month old sister that still can't walk does things better than him..Dr said 'maybe she is just smarter than him' He walked at 10 months and was advanced with all his skills up until it all went downhill.
* A few of the Food issues
-Will not eat anything other than a few select foods (peanut butter sandwiches, pasta, chicken nuggets and noodles are the main things)
-Will not eat fruit unless it is puree
-Gags till he vomits if something he doesn't eat is put near him and gets extremely upset
- Very sensitive to change in food...once picked mince out of a pasta sauce i hid to try to get some meat into him.
Some of his Sensory type issues-
- Cannot handle loud noise...always wanting volume of tv and radio turned down. Loves mowers and vaccume cleaners but runs a mile screaming if they might get turned on.
- Will not play with play doh, finger paint, mud, etc
- Will not wear socks or thongs and will only wear clothes if he has to. Will run around naked in 0 degree weather! Hates tags etc.
- Have to hold him down to brush his teeth, wipe his face etc.
- Does not like being kissed or light touching, wipes his skin imediately
That's just a few things i can think of right now...SO my questions are
A) Does your child on the spectrum have eye contact, smile, show affection, like animals or show empathy?
B- Are any of those behaviours i listed consistent with being on the spectrum rather than OCD and does your child display any of them?
C) Could my son just possibly be OCD and i am overreacting?
ANY help is greatly appreciated. I am just trying to gather as much info as possible. Every little bit will help and possibly ease my mind too...TIA xx