I have posted some of our story earlier, but our daughter is now 21 months and has no ongoing lung problems (although I do still have a slight panic whenever she coughs!). Although she had her lower left lobe removed in entirety at 8 months, her Doctors can't detect any difference between her lungs which is a great sign that the remainder of her left lung has compensated for the removed lobe. She also just had chest and spine xRays and they are all normal.
Our daughter had the surgery via keyhole - was only the 2nd child to have it done in NSW but it meant her recovery was so much faster and she has 3 small scars under her left arm. She was out of hospital in 48 hours and was walking 6 weeks later! It may be worth asking whether Drs have started performing the surgery via keyhole in NZ? They may not be but you never know!
Although our daughter did not have any obvious signs of lung issues prior to her surgery I know how scary it is to know that something is wrong and not knowing what the final outcome will be. It isn't all as bad as what you read on the Internet though!
I'll be thinking of you and hope you will send an update following the CT scan.
Thank you so much for your information, I read above and that is so awesome about your daughter's recovery and operation. All I know is an incision is made on his right side not sure of anything else yet. And was told he will be in hospital for 5 days for recovery. Our doctor said after that he'll be fine to come home and that he'll be fine afterwards.
I understand you on the cough. My son gets a cough constantly, lasts for 1 - 3 days and what upsets me the most if you can hear his chest rattle I always think he will choke and get sick again. I keep with my positives that he is ok and he's been out of hospital for 3 months now and is doing ok with no major episodes. I just want to get to the operation and have it done. Does your daughter still get coughs often or is it now just a cold she will get? It seems like if we take our son out for even 10 minutes in weather that isn't hot and sunny, just a mild wind and with shade and he'll break out in a cough the next day.
I'm so glad to have found somewhere to talk to someone about it. I feel so isolated and that my child is just defected. First born early, then having apneoa's and had cpr, stayed in ICU for a week, and now confirming the sequestration. I just get so down about it like this isn't going to be a means to an end and having a healthy baby. I feel right now like forever he's going to be sick and unable to be like his brothers.