Hi

My name is Amanda. I have no children, havent tried to have a baby before this pregnancy.
We fell pregnant straight away after coming off the contraceptive pill.
We went in for our 13 week ultrasound,(our last ultrasound was at 9weeks with strong heartbeat) and
we were very excited, looking forward to seeing our baby on the ultrasound monitor only to be told our baby had
no heartbeat. The next day I went into hospital and they did a D & C. Over the next 10 days I had severe swelling
and my whole torso was in terrible pain. The hospital told me only come in if I bleed excessively or have a high fever. I didnt bleed alot or get a high temp. So not knowing what to expect - we thought this was normal to be in this much pain and have a stomach so bloated and swollen. So my GP 10 days after operation and she said your tummy is too swollen and tender, sent me for ultrasound. GP said material/blood is left in your uterus which needs to be removed by another D & C. Already in so much pain, I was so scared. Long story short - we went into hospital, they said i had a very bad infection, put me on a drip with antibiotics and sent me home with antibiotics.
Got home - and had a call from the surgeon who did the D & C 12 days now earlier, he said -sorry we should have been monitoring you - tissue tests on your foetus showed a Partial molar pregnancy. And we should have already done a blood test to test your hcg. So I had hcg it said 8.4 which my gp thinks is actually 8400... I dont know.
Then I have to go to hospital for weekly blood tests to check hcg for 6mths to make sure cells didnt move into my lungs, brain or heart etc and become cancerous.
My partner and I are emotionally exhausted.
I had no idea, I could maybe get cancer and (die) from just wanting to have a baby.............
Even though I am going into hospital again next wednesday for blood test - I think I am also going to book in with a private specialist gyno to find out all I can.
We have gone through hell the last two weeks and I dont want to go through this again.
What upsets me or angers me is on top of losing our baby and feeling sad about this - we were overloaded with info from these two doctors over the phone, not even in person, when they rang and mentioned miscarriage, cancer, etc and then my GP said to me why are you crying... I was in her surgery and the gyno at the hospital said - are you always this anxious and worked up.... ummm I have just been told today that I might get cancer, on the back of me trying to come to terms with losing our baby... wow....
I just wondered what experiences anyone else has had with partial molar pregnancy.
I felt very alone and now I have researched it alot on the net, I still wonder why all of this has happened and the strangest thing is I dont know anyone before this close to me who has had trouble/health issues to have a healthy baby... its only now that I have heard from other women who said they miscarried before having their babies... funny how so many women keep this so quiet.... sad Sorry for long story..... just venting ..been a big two weeks... every emotion has been felt by myself and my partner. He has been wonderful and supportive smile

Hi

My name is Amanda. I have no children, havent tried to have a baby before this pregnancy.
We fell pregnant straight away after coming off the contraceptive pill.
We went in for our 13 week ultrasound,(our last ultrasound was at 9weeks with strong heartbeat) and
we were very excited, looking forward to seeing our baby on the ultrasound monitor only to be told our baby had
no heartbeat. The next day I went into hospital and they did a D & C. Over the next 10 days I had severe swelling
and my whole torso was in terrible pain. The hospital told me only come in if I bleed excessively or have a high fever. I didnt bleed alot or get a high temp. So not knowing what to expect - we thought this was normal to be in this much pain and have a stomach so bloated and swollen. So my GP 10 days after operation and she said your tummy is too swollen and tender, sent me for ultrasound. GP said material/blood is left in your uterus which needs to be removed by another D & C. Already in so much pain, I was so scared. Long story short - we went into hospital, they said i had a very bad infection, put me on a drip with antibiotics and sent me home with antibiotics.
Got home - and had a call from the surgeon who did the D & C 12 days now earlier, he said -sorry we should have been monitoring you - tissue tests on your foetus showed a Partial molar pregnancy. And we should have already done a blood test to test your hcg. So I had hcg it said 8.4 which my gp thinks is actually 8400... I dont know.
Then I have to go to hospital for weekly blood tests to check hcg for 6mths to make sure cells didnt move into my lungs, brain or heart etc and become cancerous.
My partner and I are emotionally exhausted.
I had no idea, I could maybe get cancer and (die) from just wanting to have a baby.............
Even though I am going into hospital again next wednesday for blood test - I think I am also going to book in with a private specialist gyno to find out all I can.
We have gone through hell the last two weeks and I dont want to go through this again.
What upsets me or angers me is on top of losing our baby and feeling sad about this - we were overloaded with info from these two doctors over the phone, not even in person, when they rang and mentioned miscarriage, cancer, etc and then my GP said to me why are you crying... I was in her surgery and the gyno at the hospital said - are you always this anxious and worked up.... ummm I have just been told today that I might get cancer, on the back of me trying to come to terms with losing our baby... wow....
I just wondered what experiences anyone else has had with partial molar pregnancy.
I felt very alone and now I have researched it alot on the net, I still wonder why all of this has happened and the strangest thing is I dont know anyone before this close to me who has had trouble/health issues to have a healthy baby... its only now that I have heard from other women who said they miscarried before having their babies... funny how so many women keep this so quiet.... sad Sorry for long story..... just venting ..been a big two weeks... every emotion has been felt by myself and my partner. He has been wonderful and supportive smile

Firstly so sorry for your loss.
Yes your right unfortunately about possibly of something more serious happening due partial molar Pregnancy. Doctors need keep super close watch on your HCG LEVELS

I'm praying. They drop for ASAP
If you need to talk or I can help you in anyway. Message me I will give you my private email account if you wish
Please take care of yourself.
Glad your hubbie supportive at this time you both need each other.
Remember I'm here if you want to talk.



I to have had partial molar Pregnancy last November. I needed. Curregtte after three days of heavy bleeding.
My HCG levels dropped within a month.

I've not been through what you've been through. I can offer no words of help or advice.
I just wanted to say i am so sorry you've gone through all this. I'm so sorry everything that has happend.
GBH

Hi Amanda,

Sorry you are going through such a terrible time. My experience lately with doctors / medical issues / miscarriages, etc is that you have to really take charge yourself. I find Dr's are way too busy to give anyone the attention that they really need and that no one is accountable for their patients. No one seems to provide test results until you go and ask for them, etc. Nothing is being followed through. I'm sure some dr's do not fall into this generalisation that I'm making, but many do. Anyway, please go and follow this up by finding yourself a private gyno that can give you the attention you need and help you through this. Make sure they don't put you on a long waiting list. Tell them you need to see someone straight away. You need to be really assertive about taking charge of your health. I hope you find some answers.

Hi Amanda,

Sorry you are going through such a terrible time. My experience lately with doctors / medical issues / miscarriages, etc is that you have to really take charge yourself. I find Dr's are way too busy to give anyone the attention that they really need and that no one is accountable for their patients. No one seems to provide test results until you go and ask for them, etc. Nothing is being followed through. I'm sure some dr's do not fall into this generalisation that I'm making, but many do. Anyway, please go and follow this up by finding yourself a private gyno that can give you the attention you need and help you through this. Make sure they don't put you on a long waiting list. Tell them you need to see someone straight away. You need to be really assertive about taking charge of your health. I hope you find some answers.

Well said Sam 37

I totally. Agree with what you advised Amamda to do



Lets hope Amamda does it for sake of her health

WOW that is awful!!!!
im so sorry to hear of your loss that is hard enough let alone with the added worry of cancer and insensitive doctors!
im sure everything will work out fine in the end and you will have your new baby in your arms before you know it.

best of luck, my fingers ar crossed for you.

Yes its awful
When I lost Bubs. I never told my family of chances of cancer. Just had blood test to check hcg levels .that was hard enough after losing Bubs.


I sat most of morning the day of d/c alone. Woke up in recovery. Had be taken to Ward stayed till 6pm before I could leave doctors orders. .once on the Ward it hard knowing what I had just done.


If I was still pregnant with Bubs would 20wks now.


Trying now thinking about that though.



Miscarrages are so awful. The pain it causes. Can't be expressed with words.

Hi,
I have been through what you are going through. Although I had a "Complete Molar Pregnancy". You will be happy to know, that no one is australia has died from a molar pregnancy (So my professor and gyno had told me). My HCG at there highest where over a million. I think that you will be ok. My levels where extreme and I had six months of chemotheropy (methotrexate). I was still able to work and function normally. Although depressed and confused as this was also my first pregnancy. After my levels returned to normal I waited 12 months and conceived a healthy pregnancy and now I have a beautiful daughter and I am 24 weeks pregnant with my second healthy baby girl. I know its a lot to take in, but try and keep yourself busy. Thats what got me through. Saving more money, paying debts off, doing heaps of stuff around the house etc. What hospital are you going to? I went to Westmead in Sydney.

Is everyone that has had a miscarriage meant to get bloods tests after to test HCG levels? I had a miscariage and D&C in October, left the hospital that night and have not been to doctors or anything since.
How long does it take for the HCG levels to come down?
Sucks a bit, feels like the doctors dont care when they dont follow anything up.

Is everyone that has had a miscarriage meant to get bloods tests after to test HCG levels? I had a miscariage and D&C in October, left the hospital that night and have not been to doctors or anything since.
How long does it take for the HCG levels to come down?
Sucks a bit, feels like the doctors dont care when they dont follow anything up.

The Miscarrage I had was partialmolar Miscarrage needed blood test done regular because if any of pregnant matter was still there could have chance of cancer.



Lucky my hormones levels are back to normal.
Can't believe your doctor. Didn't tell you to make appointments for blood test.



Seriously. Please make doctor appointment. Get your hormones levels checked.


ASAP.


Please take care of yourself & your health. Is important.

I've never been through what you're going through but just wanted to say I'm so sorry for your loss. Life is just so bloody unfair sometimes. I've had 2 m/c's and they were hard enough... I can't imagine all the added stress and heartache that you've had to endure. Again, I'm sorry for your loss and I'm sure you'll have your beautiful lil bub before you know it! GBH smile

Is everyone that has had a miscarriage meant to get bloods tests after to test HCG levels? I had a miscariage and D&C in October, left the hospital that night and have not been to doctors or anything since.
How long does it take for the HCG levels to come down?
Sucks a bit, feels like the doctors dont care when they dont follow anything up.

No, I've never had my hcg levels tested after m/c's. Though once I did have ultrasounds to check everything had cleared itself out. Mine were both natural m/c's though. If you've had AF since having D&C I'd imagine your levels would be back to 0. And you're right there is no follow up - especially if you've gone through the hospital.

I don't know what you're going through but I just want to say I'm sorry for your loss and I hope you don't give up. I had a m/c and a son that died at 6 months old. So I know pain. But its a most wonderful miracle when you do have a healthy baby. Its hard though, to find the courage to go again. I hope you heal quickly, you've been through so much.

Hi Amanda,

I'm so sorry to hear you have gone through the same as I have. I wouldn't wish this on my worst enemy.

Mine happened last August. I too had and early at scan, at 7 weeks as I had spotting, and there was a strong heartbeat. We then went for our 12 week scan and was told there was no heartbeat. I was devastated and had the d& c the following day.

A week later I received a call from his receptionist who tells me i need to go for weekly blood tests but they didn't know why and wouldn't let me speak with him.

So I did as they asked and when I went for my 6 week post op check he said I still had to do the weekly bloods and couldn't try to conceive for at least 6 months as he needed to keep an eye on my hcg. I was bawling as I so desperately wanted to try again. Didn't ask him why as all I could think of was that I couldn't try again right now and when I called the office a few days later the girls wouldn't let me talk to him again!

The weekly bloods went on for a couple more weeks until one day I received a phone call (finally from him!) saying that my levels where still high and that I needed another ultrasound the next day, then another d&c, then scans on my head and lungs to check for tumors and then probably chemo. He told me this all over the phone and I was just a mess. I said I thought I just had a miscarriage he said "oh no love you've had a partial molar pregnancy."
I asked him what that was and he didn't give me an explanation. I had to google it when I got home!!

Anyway I had the ultrasound and the d&c but as my levels dropped straight away after that I didn't have the scan or chemo thankfully.

I am still on monthly blood test for 2 more months if everything goes well.

I would have only had 9 more days till my due date sad
I am so depressed and hate being like this.

All I can say is just take it one day at a time. It's very hard as nearly no one has heard of this illness so you have no one to talk to.

Take care xx

Hi Amanda
I hope this finds you recovering as much as you can from you experience.
I had the same experience 5 years ago went for what should have been my 12 week scan and no heartbeat. Was measureing 9 weeks and not any sign if miscaridge.
I went in for a D&C that same night (Friday) and was released the next morning because i had some bad bleeding during the D&C. I found out before i left it was a partial Molar....this really meant nothing to me at the time.
By Sunday night i was home and shivering and sweating and taken to emergency ....this experience with my public hospitalw ill never ever make me go back there again. Theyw ere suposed to call my private doctor and instead waited until miday Monday to call!(she had bad words to them so i heard). I had an infection and after another d&c i was in hospital for 3 days.
I went through the weekly blood tests then fortnightly then mthly and 9 months after my d&c i was pregnant again.
I have since given birth to 2 beautiful healthy children with another on the way.
As far as my doctor could tell me there is no explanation to it and she advised that it's a one off thing that will not happen again ( i dunno how true that is).
The next few months will be hard i admit esspecially with the constant reminder everytime you have a blood test but you will be able to try again soon.
Hang in there