Well sorry if this is a bit long but here goes...
First a bit of background..My son ashy (5) has CP (cerebral Palsy) a rare type which makes him floppy like a rag doll, he wears splint constantly day and night but mentally he is fine - he does have some autistic type behaviours due to severe sensory sensitivities which can be difficult and frontal lobe damage which causes poor impulse control. Sometimes he gets quite hooked on things and wont let an idea go or will think about something quite upsetting and cry and cry.
He's actually pretty smart and I love him to bits and he has heaps of friends but he's coming to the age where he has started asking questions about himself - why he cant do this and that and others can.
He knows he has differences from others kids - he's very observent (sp?) and listens to everything!! (dont they all!). I've never hidden the fact that there is anything different about him and have always been quite open and will tell him - as best I can - and explain what he has - even if his understanding of it isnt great I thought that was important as he was always hearing his therapists talk anyway and he was hearing the words CP also.
Anyway he has starting saying some things of late totally out of the blue (we dont talk about it much or point the fact out that he has CP) that tug a bit at the heart strings such as "I hate having cerebral palsy, if I didnt have cerebral palsy then I would be able to jump like indie" and stuff like "indie is a great jumper, I cant jump though - I have cerebral palsy but indie doesnt - maybe when im eight I wont have cerebral palsy anymore and I will be able to jump to" .....
Anyway so today he was sitting on the couch after having his friend over to play and he goes "mum will I have cerebral palsy forever" I say "yes" then he gets very upset because he doesnt want it forever and he crys for a good 40mins saying he's never gonna jump...
The jumping thing really bothers him, its one thing that he has focused on and knows he cannot do. Its not really even about that though I think thats the only connection he can make at the moment as there is many things he cant do that his friends can but this is the one he can verbalize (sp) really well.
Anyway so I try to explain to him that everyone has something they are not good at, im not good at whistling - actually I barely can at all but im good at drawing - he's not good at jumping but he's great at being a big brother and video games. He said "yeah and falling over" (seriously mind you - as a good thing - it breaks my heart that he would even think of this).
I also tell him to never give up and the important thing is to always have a go and keep trying - he said he wants to give up. I think maybe he said that cause he cracked the sads but im not sure how much seriousness was behind that :/
Anyway apart from telling him those things I dont know what else I can do. He has heaps of friends who love and except him the way he is at school and out so this is all coming from his own little head.
Im not sure what ashy tells his friends when they ask (most of them never do) although one kid asked him why he walked like a penguin and he said "I dont know but your a great walker!" He has great confidence most of the time but he gets really down on himself. I worry its just gonna get worse and I want to give him positive things to focus on and a positive attitude to himself and life and to focus on the things he can do.
So anyway my question is whatever big or small makes your child different from others how do you teach them to accept who they are and not wish they were someone else or something else. How do you get them to be proud of who they are and everything about themselves.
How do you get them to understand and accept who they are. Do your children talk about the things that make them different do they get sad about it and what do you say??? I just dont know anymore.....
Sorry for rambling im a bit tired, thanks if you got this far - would love to hear some of your mummy opinions...
Cady





