Ezekiel is 12 months old but he had surgery at 2 days old with tracheasophageal fistula and bout 2 weeks ago we been in wellington hospital for 3 weeks getting his esophagus dilated and also had acid reflux for a while now, which we didn`t know and he been vomiting his food out most of the time...he`s on omeprazole now for his reflux and is doing well on his pureed food but just slowly going to introduce mashed and lumpys because he`d been having trouble with it, but what i want to know is that now he`s eating a lot better, he is just spilling every now and then like he did when he was a wee boy, sometimes out the nose or mouth, like a liquidy type, and it smells too but he`s very active boy, he is on the go all the time, but is that normal for a one year old to be spilling like that?
Thanks for contacting our organization. It sounds like you’ve had a rough time of it, especially with him needing surgery so young. I’m sure that the TOF repair and also the stricture has made things all a lot more complicated. I presume you are getting help from speech therapists with regards to his eating difficulties, but if not, then that would probably be something that should be considered.
The reflux itself (which is not at all unusual at that age), can also add to his feeding difficulties, as I’m sure you know.
While not every bub still suffers from vomiting or other signs of reflux at that age, there are still quite a good number who do (they don’t all grow out of it at 3 or 6 months like so many parents are told, and some suffer from reflux, and vomiting, until they are 18 months old, 2 yrs old, or even longer). Given the other issues, I don’t think it’s at all surprising for that to still be a problem.
I thought it might be worth mentioning too, just because it is so common in our bubs, that many of them are sensitive to dairy, so perhaps that is worth keeping in mind if things don’t settle.
If you are concerned about him continuing to vomit, please talk to your doctors about it. Are they concerned if he has any motility problems? With food passing through his gut more slowly perhaps?
Also, do you have a support group for TOF babies in NZ? I know of one in Australia, but I’m sure there must be something in NZ as well. If you aren’t a part of it, then perhaps the social workers at the hospital can help you out. RISA is able to offer support regarding reflux, but don’t have much experience with the TOF side of things (though we have had members in the past with it). IF there is anything else we can help you with, please let me know.
I hope that helps, and I hope you get to go home soon.