People who have been touched in some way by a genetic childhood disorder via a friend or family member will often find comfort in hearing about the challenges and triumphs of others who have had similar experiences.
You can read stories from other families who courageously shared their stories with us.
If you would like to share your experience please send us your story. By sharing your own story, you may help other families who are going through a similar experience and help to raise awareness of the effect of genetic conditions in the community.
There are many organisations in the community that have been established to provide support to families caring for children with a genetic disorder. We’ve provided an overview of a few support and information services.
Last Published* December, 2022
*Please note that the published date may not be the same as the date that the content was created and that information above may have changed since.