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Worried about DS2 :( Lock Rss

Honestly, I do think you are right to be concerned. Sounds exactly like what I noticed in my kids, especially the not making "normal" developmental sounds. Mine always squealed and said "Ahhhhh" and I couldn't understand why they all did that.

Unforunately though, there is basically no clinical understanding of ASD at that age. I understand it well and I can see it and did see it in my kids from birth, and I believe that it is actually very noticeable from that age - they are just different, and people often think it is regression but in my experience that is just the normal progression of ASD. Often, the "deficits" of ASD just seem more notieceable at certain ages, making it stand out more IMO.

People just don't understand how to notice it so early yet, but they are learning and they do that by looking at "at risk" kids. Even my partner thought I was nuts though when I told him our 2 youngest were autistic, when they were babies. It's just the small things, and not all the documented symptoms can actually manifest yet at that age because babies have such small control over their own lives. There are baby symptoms which exist but are not documented, it is just too early for us to understand that much about autism as a society. People look at the normal diagnostic symptoms and you can't match those to babies yet - babies have the same core deficits and difference but they manifest completely differently. It won't help you to look at the symptoms for older kids.

I hope it is okay for me to reply so honestly with you.

There are a lot of developmental milestones and social milestones that ASD kids will meet; the red flags of autism are actually mainly talking about the more severely affected kids.

Maybe you could do some reading of autism acceptance, like blogs and self advocay networks, to help make the idea of your younger son maybe being autistic, not so worrisome to you? I just know what it feels like on the other side of the fence. Complete acceptance feels great.

I understand your concern given the issues you've had with DS1. I don't need to tell you that the spectrum of "normal" is vast...

Just to give you some perspective though

My DD rolled both ways at 3 months. She could also reach for toys in an organised, controlled way
At 6 months - she could sit up very briefly unsupported if I put her in that position but she had made no efforts to crawl and aside from the "goo goo" type noises was not making other sounds.
At 7 months she commando crawled and this continued until she was 11.5 months before she finally did hands and knees crawling
She didn't start making speech sounds until about 10 months
She walked at 16 months and at this time also said her first two words "ta" and "dog" and used Dadda appropriately

Now she's right on par for a 2 year old. It seemed that she just slowed down for awhile and wanted to hang on to her infancy! What I didn't see at the time was that there were other developmental things that she was exceeding at - namely, her coordination. She was able to use a fork and spoon by 15 months and was doing other small things that I thought were normal but later realised other kids take a bit longer to master

As always, if you really are worried it's good to get checked but you might not have to worry just yet




Follow my blog "Bed Rest for Baby" at http://www.babysteps1804.wordpress.com

Don't blame yourself, you're doing the best you can with really crappy circumstances and not enough support.

If I were you, in relation to DS2, I would just continue to watch and see what happens and remind yourself that speech and gross motor are only two of the areas of development and maybe he's just busy focusing on other things for now. He might just need a bit more time and if it is a true developmental delay, it will soon declare itself




Follow my blog "Bed Rest for Baby" at http://www.babysteps1804.wordpress.com

Ilovemylittlebugs wrote:
Windmill, we are having dd tested on the 6th and I know you know a lot about it and these are what we are worried about
She hoards won't let people touch her pony back pack with her treasures in there will cry or lash out of a sibling does but will look confused if another child does

She is speech delayed

Has trouble with adults like shy and hides but is ok with kids but looks lost in play some times, she can warm up to people though pretty well.

She is a stickler for things in there spots if a toy falls out if its spot its a 45 minute meltdown

She has aggression issues


Dp has ADHD and we thought that maybe her problem as we have a one in 5 chance by genetics (do his dad his uncles and his bro all have it)
So in your opnion does dd sound autistic?


omg I just wrote the longest reply and it just disappeared.... i hate when that happens and it was actually important! I will be back to write a new reply to you smile
oh axiom. Massive hugs. I am so sorry that it is so stressful. I know you will be on super high alert with ds2 simply because of ds1. It probably won't be help put your mind at ease in the slightest, but I wanted to let you know that my dd2 had no interest in proper crawling whatsoever until she was about 10 months and then she only did it for a week and went straight to walking. Vocally, I don't remember her doing the basic baby noises, (thats not to say she didn't make them, I just don't remember) she used to just screech (ear piercingly loud) which she did until she was over 1.5. I never considered it anything other then its just how she was. She has always been full on (as in she could climb the back door and open it before she could walk) but she is not on the spectrum.
take it easy.
xxxx
that is great Axiom!
Wow you have a great doctor! I thought the same thing with the 18 month check but was told they only do it if you have concerns.

GBH, to you. Your doing a great job
Ilovemylittlebugs wrote:
Windmill, we are having dd tested on the 6th and I know you know a lot about it and these are what we are worried about
She hoards won't let people touch her pony back pack with her treasures in there will cry or lash out of a sibling does but will look confused if another child does

She is speech delayed

Has trouble with adults like shy and hides but is ok with kids but looks lost in play some times, she can warm up to people though pretty well.

She is a stickler for things in there spots if a toy falls out if its spot its a 45 minute meltdown

She has aggression issues


Dp has ADHD and we thought that maybe her problem as we have a one in 5 chance by genetics (do his dad his uncles and his bro all have it)
So in your opnion does dd sound autistic?


Sorry for taking so long to get back about this.

Well, ASD is pretty complex, and it isn't necessarily just behaviours that will indicate anything in itself - it is mainly the reason for the behaviours, as well as the degree to which the behaviours are different and interfering in someone's life. I will give you as much speculation as I feel that I can based upon the info you gave me about your daughter.

The hoarding. Hoarding is very common among ASD people. This is because ASD people are very focused people; they develop attachments to things and topics. They think about their interests a lot. All kids have favourites, but not to the same degree as ASD people. That being said, some kids without ASD may also be hoarders, maybe for a different reason to the ASD kids. If you compare her interest in the backpack and her treasures, to your other kids' favourite things, is there a big difference? Your daughter's behaviour with hoarding and not wanting others to share, would be on the ASD checklist and could be a part of ASD.

You said a few times that your daughter seems confused in social scenarios. Do you know WHY she is confused? Do you know what triggered the confusion each time? Social difficulties are a hallmark of ASD, and basically the main issue with having it is this. Being shy or wanting to play with others is not really linked to ASD. ASD means that there is a part of the brain that does not have innate skills that the rest of the population have, about socialising, making friends, having a conversation, and understanding social rules and etiquette. Heaps of ASD kids LOVE to play with other kids - but the problem for them is that they do not know how to. So, maybe have a closer look at your daughter and how she plays with others. Like, does she know how to approach a group to join in a game? Does she know that other people won't necessarily want to play the same thing that she is playing? Does she know how to sustain a conversation? Does she listen to other kids talk and does she pay attention to them? Does she have any friends outside of the family that she plays with?

Wanting things to stay in the "right" place is definitely an ASD type behaviour; that is probably the thing in your list that most suggests ASD. That comes under the "rigidity" heading in a professional sense.

The aggression issues. It matters most WHY she is becoming aggressive. Kids with ASD are more prone to using aggression when things go wrong, because they have problems with emotional regulation to a greater level than other kids of the same age (who will all have varying degrees of having to learn emotional regulation). Is she getting aggressive because someone is touching her toy? Because someone is in her space? Because a line of toys or her block tower or something she was trying to finish got ruined? Do you think that the aggression is excessive compared to your other kids? Is the aggression environmental or does she have the same problem in a wide range of times?

Speech delay used to be used as a part of the ASD criteria, but I think they removed it. However, it would still be considered as suggestive of ASD, especially combined with the other things you mentioned. How speech delayed is she? Does she use other forms of communication that you can understand? Does she isolate herself a lot instead of interacting?

Meltdowns are indicative in themselves as well. Poor thing, meltdowns are horrible sad

There is actually a link between ADHD and ASD. Some people have both, and both often appear in families (like one sibling with ADHD and another one with ASD).

ADHD can result in aggression, but is she hyperactive or having trouble concentrating? Those things would be more ADHD-like. The other things you mentioned don't really seem like anything to do with ADHD to me.

Who suggested an assessment and for what reason?
Axiom wrote:
DS2 is now 6 months old and I'm starting to get (even more than before) concerned. He seems different to DS1 when he was a baby but... he started rolling at 3 months - and he's still not even attempting to crawl. He can weigh-bear when we hold his hands, but he's been able to do that since he was about 4 months old. He can roll a few metres to get to toys out of his reach.
The other thing which concerns me is he's not making "da" "ga" "ka" "ba" sound yet. He makes grunting/growling, deep toned and high-pitched sounds and says "ah" and "goo" and blows raspberries - but he doesn't copy me at all. Even DS1 was copying me sometimes at this age. He smiles at me and DH and loughs when we're being silly/play peekaboo. He smiles at himself in the mirror.
I'm just really stressing because it seems like his development has slowed down. sad
He also scratches his head and different surfaces (not hard - more like he's feeling things) - like DS1 used to. He's been a bit grumpy for a few weeks as well and hates when people talk around him for a long time (gets really unsettled). I'm gonna make an appointment to see my GP. Hopefully he won't dismiss my concerns like he did with DS1.


Hey Axiom I can just give you my own example with my son to compare so here goes...

Cant remember when he rolled front to back but he didn't start rolling around the room to get to things until he was 10 months old. Didn't crawl until 12 months. Didn't walk till nearly 16 months.

Didn't say "da da da" until nearly 8 months - that was his first sound. I remember being miffed because hubby thought he was saying Dadda and I was jealous that he wasn't saying mumma yet. He was (and still is) a hard out squealer.

I guess I can just say try not to worry and time will tell....but that's easy for me to say as I'm not in your shoes with your DS1. So I can understand why you'd be watching your 2nd so closely.

GBH's anyway.



I'm glad your GP took your concerns seriously Axiom.
I don't know much about ASD but this has really enlightened me. Also scares me slightly as I know there is some ASD on DH's side. Is it hereditary? I've mentioned issues with DD so many times, but she does all of those things and more:
- She can roll from side to side but hardly ever attempts to. Whilst all the other babies on rolling like crazy on the floor she just lies there and sucks her hands or looks at me.
- She will do tummy time but doesn't attempt to crawl. I didn't think this was unusual for 6 months though?
- She makes cooing sounds but no distinct "ka, ba, ga" sounds.
- She doesn't blow raspberries and I have noticed other babies her age doing this.
- She screams everytime someone other than myself or DH tries to hold her (I had just assumed seperation anxiety?)
- We have a lot of sleep issues which a lot of people on this site are aware of. But the last few days she has started having these HUGE tantrums before bed. The first time we thought something was wrong with her, but it's just her fighting us. She screamed so much she's lost her voice, and she started doing this weird head twitch because she was so worked up. It really scared me.
- She rubs her face in the mattress and scratches it all the time. I didn't know this meant anything, just thought it was a habit?

Should I be concerned or could this all be a part of healthy development also?

Ilovemylittlebugs - girls with ASD are often diagnosed later than boys because they're better at copying social interaction, despite not understanding it. Your description of the game your kids were playing with the witch's hat stands out to me. Failure to recognise danger eg roads and cars is also common in ASD kids. My DS1 went through a stage of being fascinated by cars and car badges. He would try to run toward moving vehicles in order to study the badge.
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