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  5. any Bubs with Chronic Lung???

any Bubs with Chronic Lung??? Lock Rss

Hey, I was just wondering if there are any mother's out there that have any babies that have Chronic Lung Disease?
My Son was born at 28 weeks weight 2lb2oz and was diagnosised with Chronic Lung at just 4 days old. He is now 4 1/2 months old and requires home oxygen 24/7. Every where we go it take a liitle bit longer as we have to hook him up to the portable oxygen bottles and make sure that we have got a spareeverything. If you just wont to go down to the shop's for milk it is about a 45 min trip. And not to mention all the oxygen tubing that we have lying around the house and the amount of time that we have triped over it.
I just just wonting to know how are other mother coping with it and how they manage with having to carry the oxygen bottles around with them. And if they have any tips that they can give me??
sorry but i cannot help you but i just wanted to send you a messege hop ethat you find some other mothers out there who can be of help

Lillie....1 year old!!!

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