Hi, my now 4 (nearly 5 yr old) daughter has labial adhesion. I found it when she was around 8 months old (she's still sometimes fused). She was referred to the royal childrens hospital brisbane, and the treating specialists said that he has stopped with surgical interventions years ago as they usually re-fuse together. He did however mention if it interfered with her urination to bring her back immediately without referral.
We've had a few issues with it, it has opened and closed on so many occassions. We've ended up in the Emergency department a handful of times as she would scream in pain. One of the times we went to the hospital they said to place Lidocaine/Xylocaine on it, so it would numb it when it was opening, as when it was opening, when she urinated it would hurt. The thing is, the lidocaine stings when first applied, so not really much help to her. She began holding her urine.
About 8 months ago it split open again and she was in agony and would scream when walking, she held on to her urine, I tried everything we were told, like place her in luke warm water and encourage her to pee, but nothing. She went 25 hrs with no urination, and with a hard tummy we took her into the ER. They checked her bladder and sure enough it was too full.
Anyway with lots of screaming and tears, they cathertered her at 29 hrs of absent urination, and referred us back to the childrens hospital, we were seen within a week, and they did offer to use an ear bud and some lidocaine and open it there and then, but said it will just heal back up, so we opted not to. My husband asked if we could put vasaline to stop the sting and stop it from fusing back up (as his mum used it on his lil sister with her labial adhesion 27yrs ago), and they said that is actually the best solution to stop the sting and to stop it closing back up, they said 2 months would be enough, but with the pain she was in I didn't want it fusing back up, I do it daily and they said it's fine to do it daily. It's now a daily routine.
So every day now at bed time, I soften some vasaline with an ear bud and distract her with makeup and I place it on (with the soft ear bud, I don't use my fingers), to this day (touch wood) she's had no discomfort/pain or absent urination. And vasaline is absolutely safe to place on that area. I do remind her often if she needs some vasaline during the day to let mummy know. I'm 34 weeks pregnant with baby girl number 2 and will be applying vasaline as labial adhesion runs in the hubbies family.
Also we were told to remind her to pat when she wees, not to wipe and when it's sensitive to use wet wipes. We also found using full cotton undies, and only bathing with baby bath to help not irritate, as bubble bath can be harsh on that area. And we also use sensitive laundry liquid on all her clothes and never switch toilet paper or laundry liquids as these can cause it to flare up. When she was in nappies we were told to stick to one brand of nappies (we used huggies as we found it wicked better) and have as much nappy free time as possible.
She was initially given celestone to place on it, as it has a high success rate of opening up labial adhesion, but it doesn't guarantee it will stay open. We don't use it. We have stuck to the vasaline. I'm available on [email protected]
if you'd like any more info. I hope your little one finds a solution soon.