hey julia, my fingers r crossed for u also!! Braeden is doing really well on his meds which is actually the same thing that Miles was on he is also on a table called "aldactone", his "spells" have been cut by over half which is great. i completly understand how u feel i was a wreck for at least 3wks after we found out about Braeden, i would just cry when he looked at me, i mean i still have bad days mostly after we have had another doctors appointment or blood test but he is strong as im sure that Miles is and they will both make it through this. its so comforting to know that someone knows what im going through and feels the same as me, although i would never wish this upon any other parent, just know that u r not alone julia, we have to stay strong for our beautiful boys. my eldest Tylar still does not know that there is anything wrong with his baby brother, i dont know if its beacause i just dont want him to have to deal with something like this or i dont want to face it myself!? hope to hear from u soon with some good news about Miles.
nat, nsw 2 beautiful boys