Epilepsy

Hello

Just thought I would start this thread. My dd is 5 and has a rare genetic syndrome as well as epilepsy. would just like to chat to other parents out there who's child has it and how do you cope what type etc??

Thanks

Hi,

My son has epilepsy. He has a viriety of szs, according to his neuro he has every type of sz except for Atypical absence szs. He's tried quite a few different meds but nothing has been successful.
There is quite a good group on Facebook url="http://http://www.facebook.com/#!/groups/epilepsyparentsaustralia/"]Epilepsy Parents[/url].

Hello

Just thought I would start this thread. My dd is 5 and has a rare genetic syndrome as well as epilepsy. would just like to chat to other parents out there who's child has it and how do you cope what type etc??

Thanks

hey hun my dd has epilepsy too...feel free to pm me
:0)

Hi, my DD has a rare condition too that causes her to have seizures as well. Coping wise I can't really give any tips other then to stay positive. It's our normal now. I get upset when no one is looking and take a breather. But We are doing everything we can to prevent seizures- even though we have break though ones. and are doing everything we can to make her life easier by early intervention.