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PYLORIC STENOSIS Rss

MY SON WAS BORN ON THE 15/09/05. WHEN HE WAS FOUR WEEKS OLD HE COULDN'T KEEP MUCH OF HIS FOOD DOWN. I WENT TO THREE DOCTORS UNTIL HE WAS DIAGNOSED PYLORIC STENOSIS. I KNEW THERE WAS SOMETHING WRONG HE KEPT VOMITING AFTER HIS FEEDS. WE ENDED UP SPENDING 3 NIGHTS AND FOUR DAYS IN HOSPITAL IT WAS THE MOST SCARIEST THING THAT HAS EVER HAPPEND TO ME. HE IS MY ONLY CHILD IT WAS HEART BREAKING TO SEE HIM GO TO THEARTRE. BUT HE CAME THROUGH WITH FLYING COLOURS. THE DR AT THE HOSPITAL NOTICED THAT WHEN HE HAD A FEED THERE WAS A POCKET OF AIR MOVING AROUND HIS STOMACH. IT HAD NOWHERE TO GO BUT UP. I HAVE NEVER HEARD OF PYLORIC STENOSIS UNTIL BYRON HAD IT. BUT NOW HE IS NEARLY 6MTHS OLD AND GROWING WELL AND FAST. I HAD A GUT FEELING SOMETHING WAS NOT RIGHT. SO I KEPT GOING TO THE DR UNTIL I GOT THE RIGHT ANSWER.

nicky,qld,byron 15/09/05

Hi nickyc,
glad to hear all is going well with your little boy. I have seen plenty of pyloric stenosis in patients but I only work with adults. what did they do to help him I am not sure if the treatment is similar for adults or children.
My first born had an operation at 5 days old and its so hard. Even though I knew she was in safe hands (I knew all the staff) I hated it. She ended up have three more general anaesthetics for a different problem but it doesnt get easier.
Bec

Bec, NsW, charlie 5, AJ almost 3

Hi Nicky

It's good to hear that Byron has recovered well.

I was born with Pyloric Stenosis, and like you, my mum had trouble finding out what was wrong with me. She had taken me to countless doctors and specialists, and I wasn't diagnosed until I was 14 weeks (by that time I was skin and bone, with a HUGE belly!). I had surgey the night I was diagnosed - keyhole surgery wasn't around then so I have lovely 14cm scar on my stomach!

My mum always worried that I'd grow up with major stomach problems, but I've been fine.

When I was pregnant with my first child, I was told that because I had Pyloric Stenosis, there was a big chance my kids could be born with it too, especially if I had a boy. My daughter was fine, and I'm hoping baby number 2 will be too (baby number 2 is a boy, so I'm preparing for the worst.)

All the best
Melissa

Mum to Madi & Jake

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