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Is there any Nurses or doctors on the forum? Need some help with results. Lock Rss

I've just had my 12 year old twins tested for copper levels via a blood test. The results are 21 umol/L for one twins & 20 umol/L for the other twin.

Is this considered high, low or normal? What are the normal ranges?

If it is considered high is it 'high' within the normal range or is it 'high' & outside the normal range?
Does that make sense? LOL.

When I requested this test from my GP he was very upfront & told me that he will not be able to interept the results as he really does not have experience in this. He rang today to say the results were there for me to collect. I've picked them up, came home & googled it & still not found anything so my next stop was here!

Thanks heaps to anyone who can help!
This site tells you normal blood copper levels. Why did you want their copper levels tested?
http://www.nutritional-healing.com.au/content/a...




chalys 'n' J wrote:
This site tells you normal blood copper levels. Why did you want their copper levels tested?
http://www.nutritional-healing.com.au/content/a...

Thank you so much. That was exactly the info I was after.

We have just had a urine test done for Pyrroles & it came back in the 30's for them both [anything over 15 is considered very high]. The next step was to get their metal levels tested, copper being one & zinc being the other.

Both twins have always had behavioual problems, poor concentration, mood swings, burn easily in the sun, unable to get into a deep sleep, anxiety, sensory problems etc etc. One twin alot more than the other. This twin was 'diagnosed' with ADHD about 2-3 years ago [against my motherly feelings] & we did the whole medication procedure on 3 different types of meds. Each one gave more side effects than fixing or helping with anything hence we gave up on that.

I stumbled across Pyrroles through another Brisbane Kids website & once I researched it online it was as if my 12 years of searching had finally came to this. Almost everything that was mentioned was my twins [especially one in particular]. The article couldve been written for me. LOL.

I'm now on a mission with my GP to find someone who knows enough about it to start me on the right track to helping my boys.
They are at a stage now where they can see that they are 'different' & can see that their unusual behaviour is not 'normal' so I'm really holding out hope for this.
I just googled it as I hadn't heard of it before... Very very interesting!!! Especially how so many psychiatric disorders (schizophrenia.... Omg!!!!) are related to it!

So have you put your boys on zinc and vit B6?




I notice leaky gut is associated with Pyroluria and addressing it can help with symptoms. Maybe you could look into diets for this? One is the Specific Carbohydrate Diet. There's a website on it and also a book by Diane Gottschall Breaking the Viscious Cycle.

http://www.breakingtheviciouscycle.info/



chalys 'n' J wrote:
I just googled it as I hadn't heard of it before... Very very interesting!!! Especially how so many psychiatric disorders (schizophrenia.... Omg!!!!) are related to it!

So have you put your boys on zinc and vit B6?


Its interesting because sooo many children are being misdiagnosed with ADHD & yet they have Pyrroles. Generally if children do not respond to the medications that are prescribed for the ADHD then it means that they may have something else contributing to their symptoms hence how I stumbled across this.

I have been in contact directly with one mum who's son was a good boy with very little traits of behavioural problems however all his life he had sensory problems etc & was an emotional child but once he hit puberty he just exploded. It wasnt just normal 'teenager' or pre-teen behaviour either. He wanted to kill himself, it was that severe. He was scared of himself & knew that something was the matter but couldnt explain it. His urine test & copper levels were through the roof. 3mths on the specialist has got him on the correct doses of zinc & vitamin B6 & he's a different boy.
CJCMF wrote:
I notice leaky gut is associated with Pyroluria and addressing it can help with symptoms. Maybe you could look into diets for this? One is the Specific Carbohydrate Diet. There's a website on it and also a book by Diane Gottschall Breaking the Viscious Cycle.

http://www.breakingtheviciouscycle.info/


We've been through the whole 'leaky gut' diet without success. Admittably I was a little skeptical about this because everyone in our immediate seemed to have this as well & so seems most of the population but we did make the effort to do the diet to the letter but saw very little change in either twin. Certainly not enough to keep it up.
Axiom wrote:
if your GP can't interpret results - he should be contacting a specialist!


My GP did warn me before he ordered the tests that he does not have the knowledge to interrept the results however I insisted on getting them done before I went to the specialist that I wanted to make an appointment with. Several reasons: I knew that the specialist had a waiting list & I wanted to get as much of the tests out the way before I went to see him as when I did get into to see him then I wanted to be able to start treatment asap. Also my twins being hypersensitive will only have a blood test in one particular QML lab, they will not got anywhere else. The specialist had their own blood lab that they like to use & I knew that they would never get it done there.
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