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kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

Oh, and I was remiss in not congratulating you on the birth of your twins. Double the joy!!!

Tuesday 02 September 04:11pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

Hi there Dilatations aren't fun at all, for the baby or the parents. I hated doing it. We had to use a steel rod and Ryley used to scream blue murder. Though he did get used to it eventually (just ...

Tuesday 02 September 01:32pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

Hi, Yes who ever thought we'd be discussing bowel motions and the like huh?! But it becomes second nature once you have a child with Hirschsprung's. I see you have joined the Hirschsprung's forum...

Monday 25 August 06:15pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

Fantastic to hear he is doing so well!

Monday 30 June 02:05pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

Hi Dianne Aren't all the Hirschsprung's stories so similar. Whenever I read one, I think I could be reading about Ryley! I have heard quite a few cases where they don't diagnose HD initially. Doe...

Monday 30 June 12:49pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

Hi Alice So glad to hear from you, and that your story is a fairly happy one. Did you have any family history of HD (that you know of?) Whereabouts are you? We are in Melbourne. Your daughter's ...

Monday 23 June 04:10pm
kristin5

kristin5 replied to topic whats your babies name???

Ryley William Geoge (William is for my deceased grandfather, and George is for my Father In Law who died of cancer 20 years ago).

Monday 21 April 02:48pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

I'd love to hear from anyone else who has a child, friend or family member with Hirschsprung's Disease. Also, there is a support forum set up for families of HD children: http://s3.zetaboards.com...

Monday 21 April 02:41pm
kristin5

kristin5 replied to topic Hirschsprung's Disease - Ryley's story

When he had his pull through surgery (whereby they removed the affected part of the bowel, and then joined the healthy part to the rectum) at 4 months (which they wanted to wait til he hit 5kgs), t...

Monday 21 April 02:38pm
kristin5

kristin5 started new topic Hirschsprung's Disease - Ryley's story

Ryley had perfect Apgars when he was born on October 3 2006 (I was induced at 39 weeks as I had pre-eclampsia), though he wasn't interested in feeding and didn't cry during the first night at all -...

Monday 21 April 02:37pm
kristin5
  • VIC, Australia
  • 10 forum posts
  • 1 boy